Tuesday, August 30, 2011

Week 5

Had chemo and radiation yesterday.  I am down to 3 chemos with 2  three weeks after I finish this round and 10 radiations.   My hair is almost all gone, my sister and I are so lucky that our mother blessed us with a thick head of hair.  People keep telling me to wait til it starts to grow back, you just don't know what you are going to end up with.  I sure hope I get the thickness back! 

Wednesday, August 24, 2011

Week 4

Went to see both Dr's Monday,  chemo Dr said everything was going good so far and was surprised I hadn't lost all my hair.  It has thinned out A LOT but not completely gone yet and maybe it won't be.  Had my 4 hour drip and then went to radiation and saw the Dr after that.  He said the same thing, we are half way down the road and hoping everything is doing it's job.  The radiation place called yesterday and said the machine broke down so I am back to 15 more visits there.  The worst side effects happen Tue, Wed & Thurs and it is mainly stomach problems.  I am experiencing a little tightness on the right side of my throat due to the radiation and it is sometimes hard to swallow.  I had a horrible night last night, coughing and stuffiness, hope I am not getting a cold.  All in all another week half way over.
Thank you to everyone for your support and kind words, I really do appreciate it.  My best friend here sends me an encouragement card every week and it is so nice of her.

Sunday, August 21, 2011

I think I am half way there

It will be day 15 tomorrow for radiation and day 4 of chemo.  I think I am half way there to the end.  I just watched the movie  Dear John, great movie.  I had a wonderful weekend with my sweet babycakes, daughter, her boyfriend and his son.  He is a wonderful father and his son is such a great kid.  I am very thankful for what is going on in my children's lives right now.  I pray it lasts for both of them.  We had a beautiful unit, it was so kind of my friend.  The kids loved the pool and we ate our way through the whole weekend.  It was so wonderful.  I am now officially losing my hair.  It is driving me crazy because I can run my fingers through it and I can feel it coming out in my nails.  It is weird.  Tomorrow I will see the chemo Dr and see if I can get a treatment,  I really do not want to get a shot in my stomach to get white blood cells back in me,  I have tried to eat but it is getting harder and harder.  Swallowing is getting harder to we'll see whathappens tomorrow, in the mean time, it was a wonderful weekend and I will be forever grateful for my friends.

Wednesday, August 17, 2011

Day 13

So far so good this week.  Chemo went pretty well, I'm getting more used to it.  Started up another baby blanket.  It makes time go by a little quicker.  My white blood cell  count is going down along with my red.  I am trying to eat good. Yesterday we did a Ruby Tuesday salad bar and I ate lots of the edimonies(?) soy bean.  I can tell my interest in food is diminishing but force myself to eat I will.  Thankfully I think I am doing pretty well, not getting nauseated or real sick from any thing so far.  I'm almost half way through!

Monday, August 15, 2011

Week 3 Day 11

Today I go for my 3rd chemo drip.  I hate Monday's.  I go at 11:30 and it lasts about 4 hours for 5 or 6 bags of drip.  Then at 4:20 I go to radiation.  Kinda takes up a whole day.  It was so nice having the weekend off, not having to run to any appointments.  I'm loving the weekends!  Wish I had some kind of game to play while I sit there, my crocheting isn't going to well and its kinda hard to do with a needle in your hand.  I tried big print crossword puzzles but I'm not real good at that either.  I am afraid this week is going to get a little bit rougher.  I can tell that my hair is changing and I think by next weekend I will start seeing patches of baldness.  I am going to go make myself a good brunch of egg salad, tuna salad, berries, watermelon and some cheese.  That should help me get through the afternoon.

Thursday, August 11, 2011

Day byi day

I don't know that I really want to write or have anything to say.  The last 24 hours have been really rough.  I had a wonderful lunch yesterday, soup and sand, but as soon as I got home I got sick.  Take more meds.  Then went for radiation and they said I needed to start coming in at 12:30.  Well, we were just starting to get into a time routine, but, so went today at that time and then they say I need to see a nutritionist.  She said I needed to make sure I was eating what they wanted me to on a list they gave me. Came home from that and got sick, really sick, again.  My chest is on fire, my stomach is on fire, more meds, tums,  prylosec, xanax, prunes,  I don't know what else.  We are suppose to go to a BBQ on Sat and I am afraid I am not gonna make it.  And a very dear and close friend of mine gave me next weekend a two night 3 day stay at Harbour House on the beach.  I am suppose to go with Jenny, Kaela, Dennis, Jennys friend for the weekend before Kaela begins school.   I am so looking forward to it cause Kaela and I love the crab legs app at the Yucatan but I am scared I am going to be sick.  This radiation is burring the hell out of my chest.  Someone, please put out the fire!!  I am getting more and more tired everyday and so at 8 o'clock I will say goodnight.  I don't know if I can keep this up, if I am going to be able to get through all these treatments, please give me positive thoughts and prayers.  I really need them right now.  Thanks

Wednesday, August 10, 2011

Day 8

Yesterday was crazy, had eye Dr. appointment, then came and sat around for radiation appointment at 3:30.  As they took me in they said I was to see the Dr afterwords.  That scared me a little bit, but found out they will see me once a week.  I told them I was having a burning feeling around where I am tattooed at because that is where they are targeting the radiation, they said that was normal because it was next to the esophogus and causing irritation,   If I am figuring right I should only have 24 radiation treatments left and 6 chemo.  I am starting to get a little more relaxed about the radiation.  I know as soon as I hear 3 or 4 clicks of what sounds like a camera taking a picture I am done.  About 15 - 20 minutes total.  I had a rough night last night with some coughing that began shortly after we left the radiation.  It has been 7 weeks since the surgery and I am just now starting to get feeling back on my right chest side.  I think some of the coughing is from that.  I did not suffer with the stomach cramps today as I did last week but I think that is because I am trying to eat right, drinking lots of fluids, and eating smaller but more often portions throughout the day.  That does include a chocolate cupcake from public once in a while. 

Thank you to all my friends who have sent me wonderful cards and encouraging words.  I love you so!

Monday, August 8, 2011

Day ?

It was so nice having a weekend off from treatments.  We always have to be somewhere at a certain time and I know it so hard on Dennis.  He is a Limo driver and gets paid for these kind of runs.  Today ran us into 5 plus hours and he was so bored.  They started my chemo today at 1:45 and it ran 4 hours, I told them I had to be at radiation and 3:30 and they said that wasn't going to happen so they called and made sure I got in as soon as I was done from chemo.  I had some trouble with one of the chemo drugs, I started coughing and chocking on it so they gave me more benedryl.  I am now up to 6 different intravenous drug in a 4 hour period.  It is crazy.  Radiation was easier today because of all the drugs from chemo.  God an eye Dr appointment to see if I can get some help with eye meds.  All my life seems like a circle, round and round.  That's from a wonderful song  Harry Chapin song from the Gold Metal Collection call "Circle".  And I have decided my favorite song for right now is :Take the long way home"  from Supertramp, that's exactly what I am going to do!  I am zooming from the drugs so I need to go take more meds to start to chill so I can sleep.  Tomorrow is another day and thank God I will be here to see it.

Saturday, August 6, 2011

Day 5

I wrote something yesterday, day 4, but somehow lost it.  It is so nice to havre two days off here of radiation.  Yesterday even though I had skipped Thursday, it was extremely nerve racking,  I was so tensed up and I even took a pill.  It smells in that room  and I get a bad taste in my mouth and I think it bothers me because I am so clostophobic.  I am not totally enclosed but the paddles and the sound of it all tenses me so.  Slept so good last night.  My Jenny girl is coming over and we are going to get something to eat on the beach.  I have coupons for buy one get one free.  We haven't done that in a long time.  I wish Kaela could join us, I miss her so,  I think I see her less now than when they lived in MO.  Capt Mike took a beautiful picture of the back bay for me that I want to try to use as a heading for the top of my page, just need to figure out how to do that.  Off to enjoy the afternoon!

Thursday, August 4, 2011

Day 4

I woke up feeling so sick to my stomach today.  I have not taken the nausea medicine yet cause I did not feel like I needed it yet.  I woke up this morning to Dennis not in bed with me, he was asleep on the couch, which we do not do, but he said he wanted me to get a good nights sleep.  About an hour before I was suppose to go to my radiation they called and said the machine had broken down and could I come much later, I said no,  I really needed a break and thank god I got it.    Tomorrow is another day,

Wednesday, August 3, 2011

Day 3

Well, it's day three and I woke up this morning with my head hurting from my haircut.  I am so used to sitting up and putting my hair in a ponytail before my feet hit the floor.  Then I suffered severely from constipation, I mean more severe than after child birth or any operation.  I should of taken the stool softener earlier but I did not know which I would suffer with, constipation or diarrhea.  I wish I could of made a choice.  Did not want to go to radiation at all.  Did not feel well most of the day and did not want to lay in the bed for this.  I ask them to turn the music up, I figure 3 - 4 songs equals the 10 minutes they say I am in there, but I find I count the whole time, today I reached 534, yesterday it was 489, now go figure that.  I told Dennis I think I better start taking a Xanax before I go there anymore.  Here we go, more drugs.  I can not wait until Sat and Sun when I do not have to go to this radiation place.  It doesn't help that we have a sick cat either.  Dennis had to go and get him more medicine today.  I think the cat is sick because I am sick.  Oh well, on to tomorrow and then only one more radiation and I have 2 days off.

Tuesday, August 2, 2011

Day Two

Well, day two was taunting.  I had to go and make copies of all my paperwork to try to get financial help with all the medical bills and had to make copies.  I went up to the Chamber to make the copies and just got overwhelmed with all the paperwork and different places that needed what kind of info.  I could tell that all the medicine that I had put in me yesterday from the chemo had me soaring.  I went and got my hair cut real short, just in case, it will always grow.  This was day two of radiation, still uncomfortable but quick.  On to day three.  I told Dennis I am down to 7 chemo treatments and 28 radiology treatments left.  YEAH!!!!!!